If you want to know what goes on in my head or in the heads of people that experience any sort of brain injury, then read this book!
Kara Swanson puts, in a light-hearted way, the struggles that encompass a brain injury. Brain injuries are like snowflakes-no two are exactly the same-but there are similarities in the things we struggle with. Here are just some things that apply to most people, but especially to brain injuries.
- It’s hard but necessary to rely on others. It’s extremely humbling to wait for others to come and help you do simple things that you used to be able to do independently. It’s hard to admit you need help in an area, but it’s necessary for you and for others.
- You choose when you’re recovered. Recovery is not synonymous with absence of symptoms. It’s when you mentally choose to move forward regardless of your symptoms or handicaps. “We are the only ones who can choose when we are recovered and it is only then that we are no longer waiting for our old lives to return on handsome white horses, ready to rescue us from this ridiculous nightmare.” We accept the new, emerging version of ourselves and choose to move forward.
- Post-it notes are your friends. If have a tendency to forget things, write them on post its and stick them around. They come in so many different colors so you can make your car or room look like a rainbow. I like yellow sticky notes because they bring the sunshine inside.
- Attitude is everything. Those who say they can’t and those who say they can are both right. If you don’t believe you can do something, then you won’t try. If you do try, then you will only give enough effort to say you tried. But, if you believe you will do it, you will put all your energy into trying to succeed. In my case, my stubbornness paid off or according to my parents, there was a use for my stubbornness.
- Forgive. Forgive. Forgive. Forgive those people that have the audacity to succeed-to be well. Forgive the people that don’t have to deal with the weights you have been handed because they didn’t choose the cards they were handed. Forgive those people that are doing what you want to be doing. Forgive the injury for changing your life. “Regardless of how you have been wronged or hurt, choosing not to forgive this injury for doing what it does is entirely your decision. It is exhausting, frustrating and unsustainable to try and fight the natural forward current of life. It makes you smile less. It makes you a sour puss, really. At the end of life, it’s routinely one of the top regrets people have, holding on to the ugly grudges of disappointment and of hurt.” Forgive them and let go, because it only holds you back.
- Thank the people that jumped in the hole with you. It applies to any situation you can’t control, but I’m going to talk specifically about brain injuries. I didn’t choose to fall into this hole called brain injury. My family and friends did have a choice. They could choose to leave-to not have their life shaken up. They chose to stay-to jump in the hole after me, knowing that their life would never be the same. For that, I’m eternally grateful to the people the have walked this journey with me and those who will walk with me in the future.
- Nothing has the power to damage you, unless you let it. “Brain injury does not deteriorate as if a cancer. It does not kill us over the years. Not unless we invite it to and feed it that power.” Granted, it stops life as we know it, but we can choose to let it stop us from living. This applies to almost everything that happens to us. It changes our lives, but unless we give it the power to damage us, it doesn’t stop us from moving forward.
- We need to fill up the holes in our lives before they fill up by themselves-because they will. Fill the holes with positive people and positive things-things that lift you up on a bad day. Put kindness into that hole-kindness to yourself and others. Be kind to yourself because you’re trying as hard as you can. Furthermore, “Identify at least one true person who remembers the best of you before your injury so you never forget that you have, time and time again, devised sound strategies which returned successful outcomes to you. Find another who understands how it feels to be brain injured now. And finally, maybe most importantly, find one shining star who will challenge you to dare big and who steadfastly believes in the person you aim to be. Let them help you fill that hole. Fill it up. Hand over hand, fill it back up.” My friends, the Fab Five, have been that for me. They have walked through this journey with me. They remind me of all I’ve accomplished and am still accomplishing. I also have a dear soul friend who pushes me to dare big, reminds me of my dreams, and pushes me closer to Jesus. I’m very thankful for her and the fact that she only knows the new me. She doesn’t have anything to compare; I’m just me, and she loves me.