Living and Loving with a Brain Injury

I’m going to be honest and vulnerable here and that terrifies me, but I hope that my words will help someone not feel alone in their chaos.

It has been almost 8 years since the worst day of my life-the day my life changed. Now don’t hear what I’m not saying. I really like the direction my life is heading right now, but I could live without the constant pain, increased self-consciousness, and occasional migraines.

That’s life now. I’ve had to adjust my expectations of how my day to day life will go. I need to get enough sleep, eat enough, manage my stress, and pace myself. Oftentimes, I’m very self-conscious of my deficits and wonder if people hold them against me. Honestly, sometimes I bring it up to explain why I’m so weird, just like I  often brought up living overseas when I moved back. I deal with a lot of insecurity and inadequacy from my brain injury.  For all intents and purposes, I’m healed. I’m a nurse, wife, mother, and student. I’m definitely not there yet, but I feel like I’m doing okay. On the other hand, I struggle with my limitations and feel like I have to prove myself that much more to show people that I have got it and that I’m smart even though my brain shuts down every so often.

The problem comes when I “forget” that I have a brain injury and try to go forward with life as a “typical” 30 year old. My brain injury has the final say in that I get a migraine for 24 hours during a big week. I forget that I’m not a typical 30 year old mom. I get overstimulated really fast and my brain can’t filter out anything. Then I get caught up in my brain and struggle because I feel like everyone is seeing the chaos that is going on in my head and ultimately judging me for it. 

If you are living with any kind of brain injury or are interacting with someone who is living with a brain injury, here are some tips that I have learned especially over the past month.

1. Be patient: (with yourself and others). We are doing the best we can. Words sometimes get caught in our heads. If you give us time and space, we will find the words and are sometimes pretty eloquent. Be patient with yourself if you are living with a brain injury. You have overcome so much (stuff people can’t see) to get where you are. I promise that you are harder on yourself than other people are. You see and know everything that goes on in your head, while they only see the outward signs. Also, remember, “those who matter don’t care, and those who care don’t matter”- Dr. Seuss

2. Give yourself (and others) freedom to be themselves. I don’t know about you but I think life would be pretty boring if everyone was exactly the same. Different is good. Normal is overrated. Everyone has their own brand of normal and that’s okay. You do not know what is going through someone’s head at any given moment. Maybe that look that you spot that makes you feel like they are judging you for something, you have it wrong. Maybe people are laughing at you, maybe they are not. Be you and be you bravely. 

This are just a few thoughts from the last couple of months as I wrestle with almost 8 years of living with a brain injury. Now I feel like I have to clarify, I don’t want this to feel like I’m feeling sorry for myself. I like my life. Do I want anyone to go through this? No. But if talking about this and some of the struggles that I experience helps someone else, then it is worth it. Here is my final thought. Simply be kind. You don’t know what demons people have or are wrestling with